Wednesday, June 30, 2010

Busy Busy day today!

Today is full of appointments for us. First off, this morning we went to see Terri for our NAET allergy treatments. Arianna is still testing positive for the Hep B and Hep C so those were treated today...her cough and fevers are definate signs that her body is trying to rid itself from these vaccines which is good. We're hoping for these to be cleared when we go next week so we can move on to more.

After lunch at home, it's off to Lifehorse in Allenton @ 3 pm for theraputic riding. Then we're back to the west side for Music therapy and dance from 5:30 to 6:30 pm.

One more day of work and then it's off for vacation time the 10 days following. Next week is Michigan Adventures and we're praying for good weather when we go. Hope to post some pictures from the horses later.

Sunday, June 27, 2010

A nice day with friends and prep for the week



This is a photo of approximately 1 month of the items my daughter needs on a daily basis except the B12 injections which are every 3rd day. Digestion issues, healing the gut, controlling the stemming, improving brain and nervous system function, providing adequate nutrition...just a few things daily that an average autistic child needs on top of the basics like feeding, clothing, bathing as well as quality time that all humans need and that is crucial to a child such as my Arianna. To ease the stress that comes with a non-stop schedule 7 days a week, I do allot of prep work. Sunday is my "prep" day but we took a few hours out to go visit with some new friends which was allot of fun and a much needed break from the usual routine. Caregivers also need time to talk to other adults and just visit, vent, compare stories, treatments, therapies...LIFE.

Since Arianna and I eat the same foods pretty much each day, I spend an hour or so cooking her lunch and dinner for daycare as well as my lunches for 3 days at a time. I pay the same fee for daycare as everyone else except Arianna's snacks and meals are provided by me and that is by choice because - #1 we're vegetarians and #2 I want healthy and organic if at all possible and #3 she has a specific diet to follow which is not provided. Even at school the gluten free options for breakfast and lunch are NOT GF/CF, therefore...I will continue to provide all food items every day and every year. Getting Arianna's supplements all measured and into containers for AM and PM also helps...I do those for 4 days and nights to save on time and to make sure that I won't forget should we have a crazy busy day (morning is ALWAYS hectic!) and such as our coming Wednesdays with 4 different therapies on that day in particular - WHEW!! I may have to move at least ONE therapy to my other day off work Friday to not drive to Troy in the morning, Allenton by 3 pm and then back over to Birmingham by 5:30 before heading home around 6:30 pm...my bank account is drained just THINKING about the gas alone but if that's what I've got to do, I'll do it.

One more week and then THIS mom has a much needed week off...from my job anyhow. A trip is planned to the west side of the state to visit a water park and amusement park for a few days and we are praying for nice weather for our mini vacation. While we don't get to do things such as vacations very often, you CAN make the most out of your time going anywhere!! On our drive to therapies we turn that into our SPEECH therapy time! We talk about what we see, colors of houses, road signs, flowers - - anything involving talking and having interaction. Believe it or not YOU are the person your child wants to talk to the most! Take every chance you get to talk to your child, cuddle, lay next to each other, play hide and seek, splash in the tub.....SMILE and LAUGH! Not only will your child enjoy that time YOU will as well.

This tired out mom is off to relax for a few before settling in for some sleep. Hope you've had a good weekend and God Bless!

Thursday, June 24, 2010

Fundraising and Updates with vaccine detox

Seems like we're on the right path with healing Arianna from her vaccine exposure as today she has a very high fever (brain fevers as I call them) since the middle of last night. Her body is fighting to remove the toxins which makes her head and back of the neck near the base of her skull feel like it's on fire with 100 degree + temps and a bad cough. It's tough to see her not feel well and my hopes are that she feels better soon. I'm sure as we get deeper into the other vaccines on the long list to treat, especially the MMR, that this will take place more often while we eliminate them.

I spent allot of time last night reading through an article written by Robert F. Kennedy Jr. linking autism and vaccines. The studies and reports go back decades yet poisoning our children has never been a concern which infuriates me to no end! The website to this article is
http://www.health-reports.com/RobertKennedyJrarticle.html

I highly recommend reading this article and sharing it with others. The most bothersome information and something that I bet NONE of us knew is that vaccines are cultured/grown on aborted fetal tissue! If you are someone who believes in PRO LIFE then medical vaccines are definetly NOT something that fall into that category. There are natural and homeopathic ways to boost immunity...chiropractors haven't vaccinated their children for decades and I bet you won't find an autistic child in their family. Also, it shares that the government and CDC have always known that vaccines and mercury are TOXIC and caused death in lab animal experiments and the reports/findings were sealed and hidden from the public. If these toxins killed helpless animals in labs why would they even consider using this on our children??? MONEY and GREED!

A few posts back I wrote of wanting to find a way to save for HBOT therapy for Arianna. I don't have a major fundraiser planned as of yet since I've spent the last month scheduling therapies for the summer, but hoping to come up with a plan by summers end. Nothing is worse then knowing there is something to help your child and you can't do it NOW when we need it most. In the meantime I've started a Hershey candybar fundraiser with friends but that is just to try and help out with Arianna's current supplement costs which average $500 a month. Should anyone know of grant's available to help us, please pass along any information you have or a person to contact. my email is chel_030@netzero.com

Wednesday, June 23, 2010

Vaccine treatment #3 and MORE great news for us!



Today was our 3rd visit to see Terri for vaccine NAET treatments. Was happy to hear that the chicken pox and DPT vaccines cleared from last weeks session! Today Arianna tested positive for Hepatitis B and Hepatitis D vaccines in her system. I wasn't even aware that they HAD Hep D vaccines!! She was treated for those two and we go back in one week as usual. I'm slowly starting to see improvements with eye contact and language coming back since we've started detoxing and supplements full force. About a week or so ago Arianna's autism symptoms came back full force and I'm happy to see them starting to fade again for her.

Other GREAT news this afternoon....we were able to get 1 of 2 spots left for Horse Riding Therapy at Lifehorse Farm for the summer!! Every week Arianna will get to interact with a horse be it feeding, petting, brushing, talking AND riding! We're both excited for the coming experience for sure. Lifehorse is another awesome non-profit group and this therapy is offered to our children at NO cost to us! If you're looking to volunteer your time or make a donation to a wonderful organization their website is www.lifehorse.org

Happy evening to you all and God Bless!

Monday, June 21, 2010

Sweet SUCCESS!! All thanks to a friend :O)

Something I've learned through the years is that when you have a child with autism, another parent or family with an autistic child is someone to keep in touch with and share with! I wish I could've had someone like myself or other friends I currently know to share their experiences with me...positives and negatives. That is why I will help, talk, support or be there in any way I can or point a family to someone who can help because every day counts.

My last post about the difficulties with Arianna's B12 shots had my spirits pretty low and I thank my lucky stars that another parent shared their tip with me for when they give their child the shots. I would've never thought to give the quick injection while she's asleep but now that i know, it has given me the chance to continue this therapy which has helped so tramendously in the past as well as renew my hope to make it through the remainder of this process.

Goodnight, sweet dreams to my angel and God Bless you =O)

Sunday, June 20, 2010

Just a few bumps in the road but I'll never give up!

Arianna has been having a difficult time with the detox from her enzyme and probiotic therapies. The B12 shots for her have come to a halt for a little while as she is one strong little gal to try and give an injection to. While it may be something that can get her to another level, the stress on both our parts have taken a toll. We'll take a break and try again hopefully after her gut can heal more and her stimming settles down and her eye contact and focus returns.

The latest goal is to come up with the funds for HBOT treatments (Hyper baric oxygen therapy) - - it's recommended to have 40 continuous treatments at a cost of 140.00 per treatment. YIKES! How heart breaking it is to know that there is something than can possibly help your child and you cannot afford it...its things like this that can easily depress a parents spirits. I'm going to try and save up enough to do 20 sessions and if paid in full w/ a 10% discount it's still $2500. SOO....time to start raising some money for this mom. I have the will so I WILL find a way! A new friend is starting this therapy for her little boy and I am looking forward to getting daily updates as to how he progresses.

Should the lotto ever come my way... $35,000 is the cost for a stem cell transplant which could be the miracle of all miracles. I've already spoke to the facility who does them but when the cost is more then I make in a year it seems impossible. But again, I have the WILL to keep going so I will have to find a way, somehow and sometime and hopefully sooner than later.

With school being out and Arianna's 3 days at daycare all day starting tomorrow, my hopes is that she doesn't regress from all the progress she's made. Any change in routines can be trouble so say a prayer for her to have a smooth transition over the summer until school starts up again this fall.

God Bless!

Wednesday, June 16, 2010

Vaccine detox today

This morning was a visit to see Terri for Arianna's appointment for her NAET treatments. Checked the Anthrax vaccine and that worked last week which was good news. Was nice to see that there were a couple vaccines that didn't test positive but Chicken Pox and the DPT DID show up so Arianna was treated for those two today. Terri was SO sweet...she gave me a gift certificate for an hour massage and a Reiki healing session ~ I chuckled when she said she gives them to moms who look like they need some relaxing. :O) Guess I was lookin' a little rough today LOL!

The weather was beautiful for the most part today. Tomorrow is Arianna's last day of kindergarten...can't believe how fast this school year went by. We hope to find out when music and dance starts as Arianna is already looking forward to that plus it will be nice to have some activities to do through the summer. A trip to Michigan Adventures in early July is on our list along with the zoo and a few other places like Pump it Up (Arianna's favorite!).

Time for sleep - an early day tomorrow. :O)

Saturday, June 12, 2010

Detox here we come! I have the strongest little girl I know!



Well, my memories are coming back from 3 years ago...the detox phase. Arianna is fighting me like crazy for her B12 shots now, her supplements, enzymes and probiotics were all slightly increased so we are now in the "fun" stages. Hyperactive is an understatement, stimming is back full force and then some, toe walking, yelling/screaming, loss of some eye contact - - you name it and we've got it right now. This is that good but bad part about removing the toxins in the body. You gotta go through hell to get to heaven is my thoughts and if God is willing, He will give us a little more heaven in a few more days...or so I pray. In the meantime, extra Valarian root to help calm the over firing so my little angel can get some rest and mom can keep her sanity. =O) The best trait my daughter got from me is that she is a FIGHTER! She is strong beyond my wildest imagination and I am SO proud that every day she keeps going and really tries hard to break free from her symptoms and improve. God Bless her soul!

As usual, I spent most of last night reading articles about biomedical treatments. I came across something called Respen - A which I've never heard of until now. Seems this herbal compound, thru prescription and only made at a compounding pharmacy, is a patch worn on the skin for 12 hours on and 12 hours off. Findings were improved eye contact and increase social wants and interaction as well as a calming of stimming and self soothing repetitions. THIS is something I will be speaking with our homeopathing practitioner about. Note that I dont say doctor because I don't deal with anyone practicing traditional medicine.

This week was another order for Arianna's probiotics and ASD muti-vitamins plus our second trip to the store (which is typical but sometimes 3 trips) for more organic foods, fruits (Arianna can eat an entire large container of blueberries and raspberries in 1 day alone), etc... Just the past 4 weeks of supplements, B12 and syringes, and special foods cost me as much as my monthly rent! yeah, the cost to help my child is what frustrates me the most, but no matter what I'll figure a way to continue this day to day battle with Autism. Next week we can add on more money for her next vaccine removal treatment too and by months end another order for supplements will be due.

On a happier note (YEAH!), we got approval for Arianna's scholarship to have music therapy and dance therapy for the summer! Arianna LOVES to play piano and loves to dance plus these activities improve her coordination, thinking skills, socialization and fine motor skills so a win win and looking forward to those classes starting the next week or two.

Although the day was kind of crazy, we did find time to have some fun and play together. Arianna's way of asking you to join her is something like "mommy, do you like to color?" Hence, that means come color with me SOOO....the picture is our artwork from this evening. :) We finished up doing some social skills interaction with her little people toys (I've become quite the narrator through the years LOL) and best of all, Arianna didn't watch one single minute of television today! She didn't ask to watch nor was it offered which is great so her brain got a much needed break from the overstimulation shows or movies can create.

Well, I'm off to do more research, more note taking and reading and list making and so on. Just another day in the life but seeing my daughter immitate me using her own play cell phone pretending to talk to grandma is worth every minute. God Bless and Good night!

Wednesday, June 9, 2010

Appointment #2 for vaccine removal

This morning was our second visit back to see Terri at Authentic Living for Arianna's allergy treatments using NAET. Wheat was the final allergen removed last week and was very happy to find that the treatment worked. For the vaccines...ALL of them will be checked as we go along but starting with the "A's" today, the first one was the Anthrax vaccine. To my surprise, Arianna tested positive for being exposed to that vaccine!! How I couldn't imagine but I quickly remembered that I was double vaccinated again at 17 in the Army. It surely wouldn't surprise me that I had been given an early trial of the anthrax vaccine back in 1988 and who knows if that is also in anything that my child was given from 2004 thru mid 2005?? Makes me very angry to know that I was lied to more than once about vaccines! It will be an eye opener I'm sure to see what all her and I have been given through our lives that we're not aware of. My hopes and prayers are that whatever we've got in us will be eliminated and soon!

On a happier note, tonight while I was on the phone with my mom...Arianna wanted to say hi to grandma. :O) I have caught my little angel a few times the last couple weeks carrying around my cell phone and just talking away. It's great to see her immitating me as well as the desire to have conversation even if we can't understand exactly the story she is telling. It doesn't matter the topic, I just LOVE the fact that she is trying and trying VERY hard. Her eye contact is improving more each day, she wants to show me and tell me about anything and everything which is SUPER and her brain is starting to connect more and more with the rest of her body too.

Only 6 more days left and my baby will be done with Kindergarten - WOW did this year fly by! We have lots of things planned for the summer and I know Arianna's definetly looking forward to visiting another waterpark, play at the beach and hopefully we'll have dance and music therapy class too.

God Bless!

Saturday, June 5, 2010

It's Totally Amazing!!!

Arianna is staying with grandma tonight and I was on the phone with my mom and wanted to say goodnight to my little angel. My mom had shared with me that Arianna made quite the water mess with bathtime and that they were getting ready for bed. I asked to talk to Arianna on the phone, which usually that entails me asking questions and getting the yes/no answers BUT tonight was SOOO different and wonderful! I ask a few yes/no questions and got the usual responses however, I asked what Arianna did in the bath tonight. She proceeded to TELL ME the story - YES, a STORY....a REAL coversation with my little girl about how she was in the tub, splashing water, a boat floating that she was playing with....my jaw is still hanging to the floor in utter amazement!

Again I'm not wanting to jinx Arianna's progress with her current treatments, B12 shots and NAET allergy sessions but THIS is what I've been dreaming of for over 5 years now....being able to TALK WITH my little girl.

I hope and pray that God continues to bless us on our journey back from the depths of Autism.

Good night and God Bless everyone!

Wednesday, June 2, 2010

What a memory!

Today was a trip back to see Terry, a NAET Allergy specialist at Authentic Living in Troy, for our first appointment in almost 3 years. It was SOOO amazing to see that Arianna actually remembers Terry as well as the room we were in years ago. She wasn't thrilled but she tolerated being there pretty well. Back in 2007, Arianna was treated for almost 50 different items she has allergies to...yes that many but there are still more to treat. The testing process is all computerized (a sensor touches a finger while an electronic wand touches the skin all hooked to a computer) but to Arianna it was a very LONG process that required weeks to complete due to her being afraid, not understanding what was going on and just being a 3 year old.

The last food related item treated today was for wheat so the next 24 hours there is no wheat allowed. This will be a weekly standing appointment again as next time we start treatments for all the vaccines. The hope is to see the same results as with the other items...that Arianna will no longer have autistic symptoms when exposed to those things. With the vaccine treatments our goal is to see improvements in cognitive development, communication and understanding/comprehension.

Fingers are crossed!