Thursday, September 30, 2010

Still hanging in there....



Can't wait to get Arianna's school pictures - - very proud of all of her accomplishments since beginning of summer! The start of this new school year was not the easiest... a full day of school versus half days and a whole new routine with new expectations and things to learn. I must say that after a few weeks of Arianna refusing to eat and not being happy going potty at school, we're slowly seeing changes for the better.

The passing of my mother, and Arianna's grandma, did cause another week or so of the same emotional troubles but lunch time and using the bathroom are slowly getting back to normal. There are times when her and I BOTH are emotional, easy to cry and get off track so this could be expected for a long time to come. We just take each day as best as we can.

Our IEP meeting yesterday went well...was great to see myself and all those involved with Arianna at school are on the same page. Arianna spends double the 'recommended' time in her general education class with the first graders as they typically say an hour to 1 1/2 hrs max....arianna spends 3 to 3 1/2 hrs and is fully involved during reading, writing, library, gym, art, lunch and recess. She will slowly be integrated with science and social studies but those are the hardest due to her lack of comprehension but I have a positive outlook that she will do well as time goes on. The teachers also hope to have a buddy system set up so that when Arianna IS in the first grade class and not the ASD supports room, that a friend who would fit well with her can be her role model and guide - THAT makes me happy and look forward to this new phase in the coming weeks. Arianna is doing very well with reading, writing (except a few harder letters like lower case d and k) and with her super memory...spelling words from memory is something she is doing very well with! Math...she is on the same level too with 'typical' kids her age/grade. Hope to have more and more great things to update as the year goes along.

Tomorrow we go back to TLC for a maintenance HBOT session....this is much needed and hope to get over there a couple times per month to do more. May also consider some extra one on one speech and OT too since she does not get that at school as much as I would like. The guidelines/regulations/requirements by the board of education are no where near what our children NEED or DESERVE in the public school system. It's bothersome that I am one of few parents I know who will request meetings, updates and changes at any given time for the benefit of my child. I would like to see more parents be proactive in their childs future in areas of school, overall health & wellness and biomedical treatments. It's hard work but worth every second of it!
I will never give up on her future and making sure she has the best that I can provide....ever! God Bless

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