Seems this past week has Arianna and I back a few steps and appears it's time to figure out a new formula. Since last weekend, Arianna has started having emotional breakdowns crying easily, she has trouble paying attention in class at school and being disruptive (which keeps her from being mainstreamed with fellow first graders), hand stemming, repeating scripts and covering her ears with her hands as well as not being able to concentrate while reading or doing homework assignments...all the symptoms I fought for months are coming back and this mom is not gonna give up that easy! What seemed to be working miracles a few months ago is now fading and fading fast...not an easy thing to watch and causes us both allot of anxiety and worry. I've been a bit relaxed with her routine of supplements in the morning...sometimes waiting til after school or dinner for those, her diet is not exactly being followed especially while at school and our one on one evening time hasn't been kept to the strict regime it was....guess it's time to get more hardcore again on all of that.
It was September when we finished up a major healing session doing hyperbaric sessions (24 to be exact of 1 hour in a pressurized oxygen chamber) as well as new stem cell enhancers and supplements plus speech and occupational therapy. I was aware that the healing effects from hyperbaric tend to wear off a little 30 to 60 days later but I wasn't prepared for all the progress to seem like it comes to a halt. I'm now on a mission to find a way to get another stint of hyperbaric chamber visits in like we did through the summer (another $1,000 worth) and back to square one with her vitamins and supplements combination. HOW I will be able to do this, I'm not sure....but I have to find a way.
On a fun note, I went along as a chaperon for a field trip with Arianna's first grade class to a local museum. It was fun but a certain song the kids sing got her all worked up, crying and carrying on so we had to excuse ourselves for a little bit. Fellow classmates paid attention as much as their age typically allows, the questions and answers they had were creative and well thought out......I dream of the time that Arianna can do the same as her peers. I pray for this every night....for my little girl to be able to THINK and comprehend the world around her. Children are very accepting at this young age of 6 and 7 years old but how will things be when they are 8, 10, 12 or older??? This is not a nice world and most adults I run into are not accepting of differences in life so these worries for the future are always in the back of my mind.
We hope to have a few days of some rest, relaxation and fun times before another week starts up. Have a blessed day and pray for miracles. Thank you again our friends and family for being with us on this journey and for all your support.
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