Yep, that's exactly what's going on since adding the B12 shots! "off" is my little angel getting some of the side effects back that she didn't have as bad. Hard part of treating autism is you have to go through the bad and the ugly to get to the good and the happy!
Day after Arianna's first B12 injection came the brain fevers as I have named them. She's not sick but she gets high fevers on the top of her head and the back of her neck near the base of the skull. Add in the restless/anxious/hyperactivity along with major stimming and you have the start of another healing phase. It's been 3 years since I've done this but am remembering it well now. Yeast die off also causes the mentioned symptoms so getting through this next few weeks alive and sane is all I ask for because usually at the end of the cycle is when the improvements will really show.
Had a nice visit with my family and Arianna got to splash around in the 'waterpark' (aka pool) at Grandma's so she was happy.
Wishing everyone a great day off tomorrow!
Sunday, May 30, 2010
Friday, May 28, 2010
My little trooper! I'm SO proud =)
Today our B12 arrived and it was time to begin this next round of injections for the remainder of the year. Arianna chose her own band aids (Dora and Littlest Pet Shop) and her first injection went very well!! No complaints or tears and she likes her Dora band aid so much i can't take it off yet. :)
supplements, enzymes and probiotics are going just fine and arianna is not showing signs of adverse side effects after this first week which is awesome! There is a start of some yeast die off which effects autistic children differently but usually being hyperactive on and off is typical. If the B12 is similar to the last time 3 years ago, Arianna's speech should improve bit by bit and start in just the first week seeing these little steps. It's not a quick fix by any means but hope to see improvements along the way over the months.
Terry our NAET allergy therapist is going to start treating Arianna next week for the vaccines she was given. I pray that we will see improvements from that as well.
The summer months are getting booked quick with various meetings, therapy sessions, activities to help with socialization, speech and communication as well as fine motor skills.
Today was the IEP meeting at school reviewing goals for the remainder of this year and for the upcoming first grade. To go back and review where Arianna started last fall and see how much she has learned and improved gives me HOPE! One of the people present at the meeting said to me at EACH birthday, remind yourself about the prior year and how you were feeling about your child and concerns you had. When you see the differences in that year you can look back and say WOW! She is doing GREAT! So....here are some memories I have of Arianna's birthdays and my concerns at those times versus the next and so on:
First Birthday 2005 Not much memory of that year due to the car accident I had BUT, I do know that my little girl was doing well and had progressed normally. It wasn't until AFTER, around 15 months old and after a mess of cocktailed vaccines followed by high fever and getting sick that she started to spiral into a vegetative state of autism
Second Birthday 2006 Arianna was in full blown autism - no response to people, no eye contact, no emotion, no sense of pain, just starting to walk but cried allot, didn't care about other kids/no socialization, did not want to be touched much or cuddle stimming, knee walking, spinning objects
Third Birthday 2007 treatments started for Arianna in fall of 2006. magnetic mattress pad, supplements, vitamins, minerals, chelation, B12 shots and numerous other trial and errors....Arianna started being verbal and talking/babbling again at age 3. she was also trying to interact with children on some level and was wanting to be cuddly again with eye contact but still limited.
Fourth Birthday 2008 more treatments adding chiropractic care for the year, continued use of a magnetic BED not just mattress pad, enzymes and similar vitamins/minerals, occasional chelation and ending B 12 shots....Arianna was enrolled in Early On in Oakland county in Rochester Schools autism spectrum specialized class preschool. Arianna can communicate her basic needs, use memorized phrases and responses, started to color, socializing more with children on her own level, happy, loving, occasional tantrums and outbursts and coming and going symptoms, new fears/obsessions she also had sleep disturbances and would wake up in the night which was new. Arianna also started attending daycare instead of being home with a nanny - this was a hope of her being able to learn social skills being around other kids her age range.
Fifth Birthday 2009 most treatments had stopped at this time due to financial difficulties. improvements seemed to stall but she slowly added on new learning, new activities but social skills, personal help skills and communication stayed about the same. toe walking came back, emotional/behavioral troubles as well. kindergarten started off rough and a long way to go with learning, writing, basic things we all take for granted that typical children do at this age.
Sixth Birthday 2010 Arianna is growing very well, very tall and talking ALLOT! her social skills are improving quite a bit - she wants to play with other kids and does but lacks the ability to verbalize or initiate conversation which limits her developing relationships/friendships. She is happy, healthy and learning more and more each month. She can write her name, can read by memory/sight word recognition, likes to color, pretend plays (HUGE!) can write numbers/letters, knows shapes, can count by 1's, 5's and 10's up to 100.
with the introduction of all the treatments mentioned in the beginning she is improving more each week now.
So...as i look back through these past 6 years, each year had it's struggles and difficulties but to see how far she has come it gives me the continued HOPE that we WILL beat Autism! Will we ever see a cure? maybe not, but Arianna has a darn good shot at a REAL future filled with happiness, love, independent skills....LIFE!
God Bless and have a great weekend!
supplements, enzymes and probiotics are going just fine and arianna is not showing signs of adverse side effects after this first week which is awesome! There is a start of some yeast die off which effects autistic children differently but usually being hyperactive on and off is typical. If the B12 is similar to the last time 3 years ago, Arianna's speech should improve bit by bit and start in just the first week seeing these little steps. It's not a quick fix by any means but hope to see improvements along the way over the months.
Terry our NAET allergy therapist is going to start treating Arianna next week for the vaccines she was given. I pray that we will see improvements from that as well.
The summer months are getting booked quick with various meetings, therapy sessions, activities to help with socialization, speech and communication as well as fine motor skills.
Today was the IEP meeting at school reviewing goals for the remainder of this year and for the upcoming first grade. To go back and review where Arianna started last fall and see how much she has learned and improved gives me HOPE! One of the people present at the meeting said to me at EACH birthday, remind yourself about the prior year and how you were feeling about your child and concerns you had. When you see the differences in that year you can look back and say WOW! She is doing GREAT! So....here are some memories I have of Arianna's birthdays and my concerns at those times versus the next and so on:
First Birthday 2005 Not much memory of that year due to the car accident I had BUT, I do know that my little girl was doing well and had progressed normally. It wasn't until AFTER, around 15 months old and after a mess of cocktailed vaccines followed by high fever and getting sick that she started to spiral into a vegetative state of autism
Second Birthday 2006 Arianna was in full blown autism - no response to people, no eye contact, no emotion, no sense of pain, just starting to walk but cried allot, didn't care about other kids/no socialization, did not want to be touched much or cuddle stimming, knee walking, spinning objects
Third Birthday 2007 treatments started for Arianna in fall of 2006. magnetic mattress pad, supplements, vitamins, minerals, chelation, B12 shots and numerous other trial and errors....Arianna started being verbal and talking/babbling again at age 3. she was also trying to interact with children on some level and was wanting to be cuddly again with eye contact but still limited.
Fourth Birthday 2008 more treatments adding chiropractic care for the year, continued use of a magnetic BED not just mattress pad, enzymes and similar vitamins/minerals, occasional chelation and ending B 12 shots....Arianna was enrolled in Early On in Oakland county in Rochester Schools autism spectrum specialized class preschool. Arianna can communicate her basic needs, use memorized phrases and responses, started to color, socializing more with children on her own level, happy, loving, occasional tantrums and outbursts and coming and going symptoms, new fears/obsessions she also had sleep disturbances and would wake up in the night which was new. Arianna also started attending daycare instead of being home with a nanny - this was a hope of her being able to learn social skills being around other kids her age range.
Fifth Birthday 2009 most treatments had stopped at this time due to financial difficulties. improvements seemed to stall but she slowly added on new learning, new activities but social skills, personal help skills and communication stayed about the same. toe walking came back, emotional/behavioral troubles as well. kindergarten started off rough and a long way to go with learning, writing, basic things we all take for granted that typical children do at this age.
Sixth Birthday 2010 Arianna is growing very well, very tall and talking ALLOT! her social skills are improving quite a bit - she wants to play with other kids and does but lacks the ability to verbalize or initiate conversation which limits her developing relationships/friendships. She is happy, healthy and learning more and more each month. She can write her name, can read by memory/sight word recognition, likes to color, pretend plays (HUGE!) can write numbers/letters, knows shapes, can count by 1's, 5's and 10's up to 100.
with the introduction of all the treatments mentioned in the beginning she is improving more each week now.
So...as i look back through these past 6 years, each year had it's struggles and difficulties but to see how far she has come it gives me the continued HOPE that we WILL beat Autism! Will we ever see a cure? maybe not, but Arianna has a darn good shot at a REAL future filled with happiness, love, independent skills....LIFE!
God Bless and have a great weekend!
Monday, May 24, 2010
Summer Sun
WOW what a gorgeous day today especially considering it's Monday. :) I hope this trend continues all summer long since we're wanting to visit the beach to play in the sand and do some swimming this year.
So far this year I have spent the majority of my free time researching the latest information to help Arianna's healing process progress. I've went back to using the supplements called ASD Plex designed specifically for children with autism as well as a new enzyme called Mind LINX which breaks down gluten and casein before it enters the gut letting the intestines heal better and probiotics can do their job to repair damage caused by vaccines and toxins.
The B12 is still on it's way but the research available on Talk About Curing Autism website is astounding! A new injection technique, subcutaneous and in the buttocks, delivers more B12 over an extended period of time as well as an increase in the time frame for injections to every 3 days instead of daily or every other day and into the muscle. I'll hope this is more tolerable over the course of the next 9 to 12 months and it would be SUPER to see improvements by the beginning of the next school year.
While Arianna is not on a strict GF/CF diet, she does have a fairly strict and regular menu with limited foods that contain the two irritating items gluten and casein. Her favorite food is her letter potatoes by Ians that are GF/CF! Sugars are kept to a minimum not only for controlling yeast build up but to keep her pearly white teeth healthy too. We do enjoy the occassional treat of an ice cream cone especially now that warmer weather is here. :)
I also look forward to treating Arianna's various allergies as well as the remaining vaccines still present by continuing with N.A.E.T. treatments we did years ago. There weren't major improvements but now that the vaccine vials are in the United States i am VERY interested to make some attempts at removing those from her system as much as possible. Since Arianna is older now and understands more, I think she will be more willing to cooperate with the accupressure treatments involved this time around.
Enjoy this week of fabulous weather and sunshine!
Sunday, May 23, 2010
Hope for progress
I'm praying that I won't jinx us but Arianna's new supplements and enzymes arrived and in a few short days there has been improvements! She is looking me in the eyes when speaking even more then usual and communicating her needs is very aparent...especialy since her new favorite treat is fruit snacks! =O)
Just waiting on our B12 to arrive and the every 3 day injections will start. My hope and prayer is for continued progress over the rest of this year. Hard to believe that Arianna will be starting first grade in September. My little girl is growing fast and all I want is for her to be able to truly enjoy life.
God Bless!
Just waiting on our B12 to arrive and the every 3 day injections will start. My hope and prayer is for continued progress over the rest of this year. Hard to believe that Arianna will be starting first grade in September. My little girl is growing fast and all I want is for her to be able to truly enjoy life.
God Bless!
Friday, May 21, 2010
My dream, to "Fix You" my angel
I wouldn't change my Arianna's personality or the little girl she is for anything, but to change what autism has done to her and her life - YES! I will never stop fighting or doing all that I can to give her a future and a life that she deserves...the one that has been interrupted by autism.
New supplements, digestive aids and more B12 is ordered and on the way. Do I look forward to the every 3 day injections or the ups and downs that healing her gut, dealing with food allergies, seasonal allergies and the other side effects of the supplements and chelation? Certainly not. But my hope and dream is that another round of treatments over the course of this year can bring about positive movement forward in her ability to think and reason more as well as communicate her feelings and emotions with me using interactive and reciprical speech. One thing that I've learned dealing with this mysterious and frustrating invader called autism...I'm stronger than I ever imagined! I'm a fighter beyond my wildest dreams and I will NEVER stop trying.
New supplements, digestive aids and more B12 is ordered and on the way. Do I look forward to the every 3 day injections or the ups and downs that healing her gut, dealing with food allergies, seasonal allergies and the other side effects of the supplements and chelation? Certainly not. But my hope and dream is that another round of treatments over the course of this year can bring about positive movement forward in her ability to think and reason more as well as communicate her feelings and emotions with me using interactive and reciprical speech. One thing that I've learned dealing with this mysterious and frustrating invader called autism...I'm stronger than I ever imagined! I'm a fighter beyond my wildest dreams and I will NEVER stop trying.
Sunday, May 16, 2010
Finally Mr. Sun came out to play!
Finally the rain left and we were given a weekend with sunshine and some warmer weather. Saturday afternoon, myself, Arianna and mom (grandma) went out for a quick lunch and then headed to Canterbury Village for a walk around. Arianna liked seeing the big castle there as well as the merry-go-round. Also just a day spending time together is always a plus.
Today Arianna and I met up with a friend of mine and had lunch at Rainforest Cafe which is always a treat with all the animals and lots of colorful fish swimming in the tanks. Then a good walk around the mall and some new books for Arianna from Miss Susan as a belated birthday gift topped off our visit. The new Donald Duck and Alvin & the Chipmunks books were read and looked through as soon as we got home.
My Sunday ending was sweet...Arianna somewhat snuggled on my lap & her dozing off to sleep was great. She's almost too big to fit on my lap now so I will enjoy as many of those snuggles as possible while we can.
Now that allergy season is about over, I decided it's time to do more chelation and get back to the digestive aids and supplements for Arianna. I will hope that this coming month Arianna does well with these things and that any symptoms will be tolerable for her so that she can finish out her first year of school well.
Sunday, May 9, 2010
Arianna was just 2 days old in this picture. I still remember how overjoyed I felt with love for the gift of my precious little girl. It's hard to believe that it's been 6 years now that I've been blessed to be a mom. Is it an easy job? I can say that the ONLY thing 'easy' about being a mother is the LOVE you have for your child and the fact that if you had to choose between yourself or your child...the easy choice is always for your child first.
I know that MY mother is not only wonderful in so many ways, she is also my best friend. She worked very hard to provide all that myself and my brothers needed growing up and she STILL DOES to this very day. My mom is the only person whom has been there for me in the good times and in the bad. She may not have always approved of every single thing I've done in my years but never did she disown me, make me feel less of a person nor stop loving me. For her, my mother, I owe her all that I have become today....a strong, independent, dedicated, fighting, protecting, caring, sharing and loving woman and mother. To you mom, I say Thank you and I love you with all my heart!
Happy Mother's Day
Wednesday, May 5, 2010
Another great few days!
WOW! Yes, that's all that I can say when I sit and listen to Arianna READ her books from school. Yes....READ! Tonights book is about how a family makes a garden and things each person does. SO proud of her and amazed at how well she has done this year of Kindergarten. Makes my heart smile. :O)
This is the time of year when carnivals start to come around and boy does Arianna LLOOVVEE carnivals!! All it took was her first ride on the mini roller coaster and she was hooked! We hope to attend a few real soon cuz it's always a good time and lots of smiles.
Hope you all have a blessed week!
This is the time of year when carnivals start to come around and boy does Arianna LLOOVVEE carnivals!! All it took was her first ride on the mini roller coaster and she was hooked! We hope to attend a few real soon cuz it's always a good time and lots of smiles.
Hope you all have a blessed week!
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